mICF Foundation established in The Netherlands

The mICF Foundation was formally registered in The Netherlands on 1 March 2019. This is a truly remarkable achievement in the development of the mICF ecosystem.

The primary mission of the Foundation is helping to reach health equity by promoting a bio-psycho-social-spiritual model to health and well-being. Its aim is therefore to revolutionise health and health care in developed and developing countries, by making the mICF Solution different from, though complementary to, all other mHealth applications generally based on the biomedical model.

The Foundation’s aim is to personalise healthcare by incorporating the functioning of a person and the contextual factors influencing health. This is expected to introduce changes on the existing continuum of systems for health.

The Foundation performs this feature using health informatics (big data) models to facilitate individualised, predictive care that will recognise each person’s functioning as a dynamic interaction between the person’s health condition, environmental factors, and personal preferences.

The responsibilities of the Foundation are therefore twofold:

  • Custodianship of the core data assets of the mICF ecosystem, namely (a) FunctionMapper content and (b) users’ health data, as well as research to maintain and grow these data assets to ensure that it is relevant to users and competitive in the marketplace, striving to be best in its class. This is performed in close cooperation with ICanFunction International (IP holding company) that has responsibility for applied technology.
  • A home for Research Partners, as key stakeholders and role players, given their historical contributions to realise the mICF concept and their future ambitions to attain health equity and a bio-psycho-social-spiritual approach to health care, using mICF as the vehicle. To perform this responsibility, the Foundation has to identify and support research (basic and applied) in specific areas as delineated by the mICF’s Objective Statement, including, but not limited, to funding.

Objectives of the mICF Foundation

Core activity 1: FunctionMapper

  • Contribute towards the development of FunctionMapper by liaising with the owners.
  • Contribute to and maintain the content of FunctionMapper, as well as derived classifications, instruments and encoding techniques, methods and technologies.

Core activity 2: Health Data

  • Provide a home for the Health Databank as one part of the integrated health informatics for storage, management and informatics of data..
  • Implement an innovative approach (such as ‘internet-of-value’ concepts) to entrench the person-centred principle of ownership and economic value, as well as protection, security and anonymisation of personal health data.

Core activity 3: Economic evaluation

  • Conduct a socio-economic cost-benefit evaluation in a formal process to determine the ‘investment dividend’ derived, e.g. in terms of improved efficiency of health services, improved patient outcomes, service provider job satisfaction, etc.

Funding activity 1: Donor funding

  • Procure funding contributions for the objectives of the Foundation, individually or collectively. However, ensure that no funding contribution may result in alienation of any IP rights of the Foundation (core IP, ICF codes and data) or the mICF ecosystem (IP applications, DApp).

Funding activity 2: Royalty payments

  • Receive a share of royalty income derived in terms of licensing agreements from the IPHoldCo as custodian of implementation projects.

Capacity-building activity 1: Masterplan

  • Procure and maintain a strategy, plans and roadmap to ensure futureproofing and competitive barriers for the mICF ecosystem, with special reference to the master objectives of health equity, self-perceived health, functioning and patient-reported outcome measures (PROMs), democratisation of health data and disruptive innovation regarding incentives.

Capacity-building activity 2: Basic research (R&d).

  • Procure Researchers and research projects for advancing the core technology in line with the strategy, plans and roadmap of mICF.

mICF Foundation Business Model

In summary:

The mICF Foundation’s scope of business stipulates that it is:

  • A home for Research Partners
  • Custodian of the
    • FunctionMapper
    • Databank security-in-use
    • Economic evaluation: socio-economic benefits
  • Receiving funds from
    • Donors / Grants
    • Share of royalties from OpsCo implementations

Notice: ICanFunction mHealth Solution (mICF) partners meeting

mICF partners are invited to the following face-to-face meeting.

  • Date: 3 April 2019
  • Venue: Kuwait City, Kuwait (the venue will be announced soon)
  • Host: Ministry of Health: Kuwait
  • Cost:  Meetings,including food and beverage is free. Participants are responsible for costs of transport, accommodation and other meals (breakfast, dinner). Accommodation will cost between $120-$160 per night
  • Visa: The host will organise your visa. The information page in your passport should be uploaded with registration.
  • Register here (before 22 February please)
  • Plan your trip
  • This meeting coincides with meetings of the Functioning and Disability Reference Group of WHO-FIC (4&5 April) and the 4th International Symposium: ICF Education (6&7 April) (http://icfeducation.org/upcoming-events)
  • More information:Stefanus Snyman (stefanussnyman@gmail.com)
  • Preparation and agenda for mICF Kuwait meeting

 

Forming the mICF Foundation

20180414_174017_HDROn 15 April 2018 the mICF Research Partners took the final step in establishing the Dutch-based mICF Foundation.

The objectives, aims and goals of the Foundation are to:

  1. Promote personalised healthcare using FunctionMapper as the integral part of the ICanFunction mHealth (mICF) solution.
  2. Entrench the health and wellness model of each person’s functioning as a dynamic interaction between the person’s health condition, contextual factors, and personal goals.
  3. Act as protector of the core data assets of the mICF ecosystem, by way of FunctionMapper content
  4. Act as protector of the core data assets of the mICF ecosystem, by way of users’ health data.
  5. Perform a social responsibility and awareness role by way of socio‑economic cost‑benefit analysis.
  6. Procure funding supporting the Foundation’s core activities, by way of a combination of ): donor and grant funding and royalty payments.
  7. Make a contribution to the long‑term feasibility and viability of the mICF ecosystem, by way of  basic research (R&d), providing a home for Research Partners, as key stakeholders and role players, and contributing to the master plan.

 

Research partners met to work on FunctionMapper 2.0

Hamburg

The mICF research partners met in Hamburg (Germany) from 14-16 April 2018 to collaborate in populating the newly released FunctionMapper 2.0 with lay terms in English, German, Dutch, Korean and Portuguese. This content specification tool, developed by the Finnish Institute for Health and Welfare (THL), was populated with ICF terms associated with hip problems.

FunctionMapper converts a person’s natural language concepts and responses to items in assessment instruments and goals related to functioning and environmental factors in every language where mICF is to be deployed. FunctionMapper has the ability to support all languages. It provides user-friendly terms to mICF frontend applications.

mICF presentation at Stanford MedX (by Olaf Kraus de Camargo)

The paradigm shift in healthcare in the last 20 years is characterized by an increase of chronic health conditions. Those usually present as a spectrum of limitations of functioning modified by the interactions between persons and environment (physical and social). The World Health Organization (WHO) provides a framework to describe and classify such variability among individuals with the International Classification of Functioning, Disability and Health (ICF).

Currently there is no user-friendly and cost efficient method in social and healthcare systems to comprehensively collect and monitor a person’s functional and contextual health-related data using ICF or any other structural framework by the patient or their caregivers. To address the needs for universal health coverage and patient-centeredness, an easy to use, mobile based version of the ICF – mobile ICanFunction app (mICF) – is proposed to facilitate patient-driven and -owned data, and interprofessional holistic care by addressing the needs of service users through shared decision-making and patient-reported outcome measures.

mICF could facilitate the dawn of a new era of universally affordable, accessible, personalized, predictive, sustainable, integrated, community-based interprofessional and transprofessional healthcare. We represent an international partnership with 284 collaborators (professionals and ePatients) from 39 countries engaged in developing the mICF – ICanFunction platform that will enable citizens to build their own functional profiles based on the taxonomy of the ICF.

It is envisaged that mICF will:

  1. ensure accurate, efficient and standardized capture of functional status and contextual information, thereby facilitate the systemic understanding of health by service users and frontline service providers,
  2. convey information securely between different service settings, improving effective communication between service providers and/or users,
  3. facilitate shared decision-making for intervention (including prevention and prediction) by making person-driven and patient-owned data readily available and by defining meaningful goals and outcomes, facilitate administration and reporting through the aggregation of data, and
  4. minimize the need for repeat data collection. In 2015 we received funding for a first prototype of our application through the Finnish Social Insurance Institution. By demonstration and live discussion with ePatients we hope to engage partners and sponsors worldwide to join our efforts to provide personalized healthcare based on function increasing social participation.

International field testing of the ICF e-learning Tool

Everyone is invited to the international field testing of the ICF e-learning Tool.

The aim of this field testing is to gather information from potential users around the world about the tool’s usability and user-friendliness. This information will help us to optimize the tool according to the needs of (future) users. You can access the ICF e-learning Tool using the following link: https://icf-elearning.com/. After completing the ICF e-learning Tool, please provide feedback using the evaluation form provided.

Please feel free to share the attached document attached document containing details and the link to the field testing homepage.

Thank you in advance for your contribution!

Kind regards,

Michaela Coenen (Michaela.Coenen@med.uni-muenchen.de)

Stellenbosch here we come!

kweekskool20 mICF partners will meet at Stellenbosch University, South Africa, from 25-27 June 2017 to plan the next phase of the mICF project! We wish all the delegates safe travels and very fruitful deliberations!

mICF prototype is getting noticed for more testing and integration to health systems!

fin

Finland developed a first prototype of the ICanFunction mHealth Solution (mICF) to enable disabled people to self-report their life situation by using lay language based on ICF and Patient Reported Outcome Measures (PROMs).

The prototype is a combination of a mobile user interface and a content metadatabase. The user interface was designed in iterative service design workshops together with end-users.  The user interface displays terminology from a Term editor metadatabase (FunctionMapper) that organises both lay language ICF-based questions or phrases and answering options and Patient Reported Outcome Measures (PROMs). The prototype is based on open source code and available for further development through EUPL 1.0 license.

Out first test results showed that this proof-of-concept was a success as the test user liked the idea behind the prototype. It enabled structured, individual self-documentation of functioning for a diverse cohort. Users will benefit from the App if their data are taken into consideration in service planning and monitoring. Adult, young and child users experienced the App as easy to use. They wanted it to be connected to electronic health and social service systems and to be easily available.

 

After the prototype launch several Finnish stakeholders have expressed their need and interest for the mICF as part of their current service development projects. These stakeholders include several ongoing top-priority governmental projects that develop:

National Institute for Health and Welfare invited them to a collaborative workshop Tuesday 20th June. The workshop brought various stakeholders together and discussed common needs and aims, timelines and available resources for mICF content and interface development and use in service planning and monitoring.  All participants expressed deep interest to collaborative mICF content and interface development. A goal was set: all these Finnish stakeholders go back home and discuss within their decision boards their decisions of roles, tasks and resources for the collaborative development plan that THL puts together. Next meeting was set 4th September.