20 mICF partners will meet at Stellenbosch University, South Africa, from 25-27 June 2017 to plan the next phase of the mICF project! We wish all the delegates safe travels and very fruitful deliberations!
Finland developed a first prototype of the ICanFunction mHealth Solution (mICF) to enable disabled people to self-report their life situation by using lay language based on ICF and Patient Reported Outcome Measures (PROMs).
The prototype is a combination of a mobile user interface and a content metadatabase. The user interface was designed in iterative service design workshops together with end-users. The user interface displays terminology from a Term editor metadatabase (FunctionMapper) that organises both lay language ICF-based questions or phrases and answering options and Patient Reported Outcome Measures (PROMs). The prototype is based on open source code and available for further development through EUPL 1.0 license.
Out first test results showed that this proof-of-concept was a success as the test user liked the idea behind the prototype. It enabled structured, individual self-documentation of functioning for a diverse cohort. Users will benefit from the App if their data are taken into consideration in service planning and monitoring. Adult, young and child users experienced the App as easy to use. They wanted it to be connected to electronic health and social service systems and to be easily available.
After the prototype launch several Finnish stakeholders have expressed their need and interest for the mICF as part of their current service development projects. These stakeholders include several ongoing top-priority governmental projects that develop:
- citizen-based digital services (Virtual hospital 2.0 https://www.helsinki.fi/en/news/real-patients-in-a-virtual-hospital and ODA project. More information on the ODA-project (in Finnish and Swedish only): www.kuntaliitto.fi/oda )
- work paths for persons with partial work ability (Sataosaa project and TOIKE project).
- mobile self-assessment for refugees (Mobitarmo, more information inFinnish only: https://www.thl.fi/en/tutkimus-ja-asiantuntijatyo/hankkeet-ja-ohjelmat/kulttuurisensitiiviset-toimintakyvyn-arviointimenetelmat-mobiilissa-mobitarmo-)
National Institute for Health and Welfare invited them to a collaborative workshop Tuesday 20th June. The workshop brought various stakeholders together and discussed common needs and aims, timelines and available resources for mICF content and interface development and use in service planning and monitoring. All participants expressed deep interest to collaborative mICF content and interface development. A goal was set: all these Finnish stakeholders go back home and discuss within their decision boards their decisions of roles, tasks and resources for the collaborative development plan that THL puts together. Next meeting was set 4th September.
Some of the members of the International ICanFunction (mICF) Partnership were able to meet at the Annual Meeting of the World Health Organization Family of International Classifications (WHO-FIC) in Tokyo, Japan from 8th – 14th of October 2016.
The event was also an opportunity to showcase the recent developmental steps for our mHealth solution, connecting with other international members at this important WHO meeting. See presentation here.
On the picture from left to right: Haejung Lee (South Korea), Matilde Leonardi (Italy), Olaf Kraus de Camargo (Canada), Trish Saleeby (USA), Joanne Valerius (USA), Liane Simon (Germany) and Michaela Coenen (Germany). Haejung and Matilde were also elected as new chairs for the Functioning and Disability Reference Group (FDRG), Olaf accepted the role for the secretariat of FDRG.
MedicineX is the most discussed health care conference in the world. In 5 conferences over 20 million people were reached! We were extremely pleased to be accepted at Stanford MedicineX 2016 as this is a conference that aligns perfectly with our philosophy – We put the person into personalized medicine.
Olaf with Lieutenant Colonel Downing Lu, MD, Chief Quality Officer for the National Capital Region and LaVerne Council, Assistant Secretary for Information and Technology and CIO for the Office of Information and Technology within the U.S. Department of Veterans Affairs
“MedicineX has changed how health care providers and patients engage with and learn from one another by amplifying the patient voice in academic medicine. Including the patient voice has moved providers beyond knowing how to treat a disease to learning what it is like to live with a disease.”
That is exactly what we want to achieve by facilitating the use of the ICF by patients and caregivers: Allow them to share how they experience health, what are their limitations and goals for treatment.
Olaf with Kristin Voorhees, Director of Healthcare Initiatives at BeyondCeliac, Dr. Dan Leffler, MD at Beth Israel Deaconess Hospital and Navita Dyal, Master Student of Engineering at McMaster University
“Patients have their voice added to the conversation, but true engagement will require meaningful participation from everyone. Diverse expertise and experiences in a health care team where power is shared in an environment of trust and respect leads to more creative and innovative solutions to health care problems.”
Attending the conference also provided opportunities to connect with likeminded developers, patients and healthcare providers, learn from their projects and explore possibilities for collaboration.
A video of the talk will soon be live on the Stanford MedicineX website.
Click here for a transcript of the presentation
mICF was selected to present an Oral Ignite! Session at Stanford Medicine X in Silicon Valley.
You are invited to join Dr. Olaf Kraus de Camargo ( Associate Professor, Department of Pediatrics at McMaster University, Canada), who will enthuse you with his talk “The ICanFunction international partnership – from diagnosis to function” Continue Reading…
In August 2016 a small working group of the mICF partnership submitted a grant application to the U.S. based federal agency, National Institutes of Health entitled “ICanFunction mHealth Solution (mICF): Improving mental health of vulnerable youth in South Africa by mapping narratives of context and functioning to ICF.”
If successfully funded, a mental health mICF prototype will be developed and pilot-tested that captures user-driven information to improve the understanding of one’s mental health and well-being. The mobile application would be useful to both consumer users and health/social welfare professionals.
A prototype of a patient-driven ICF-based assessment tool is being developed for persons with severe disabilities so that they can self-report their life situation.
A Finnish team is developing the first mICF proof of concept in their “Feasibility Study of a Patient-driven Mobile ICF-based ICanFunction Assessment Tool (mICF)”. This one-year project (2016-2017) aims to design and develop a first prototype (POC, Proof of Concept) of the mICF for person-centered assessment of functioning based on ICF.
After a successful pitch of mICF in the Dutch Hackethon, a team worked out a mock up to build an interface for mICF. The team used the case of Tineke, a patient suffering from spinal cord disease, having a dream: travelling to Rome. But when she wanted advice on how she could travel to Rome without any medical dangers, the healthcare professional simply pointed out that her medical issues would prevent her from doing so. While healthcare professionals deal with patients and their health problems, patients view themselves as people with goals, needs, wishes and dreams. During a consult these views are not always aligned. Hence, opportunities to increase a patient’s quality of life might be missed.
The Term Editor is an open source software suited for developing and maintaining terminologies, ontologies and information structures. The mICF content in Term editor includes ICF (International Classification of Functioning, Disability and Health) terms, natural language terms (i.e. related terms and synonyms) and terms from instruments to measure functioning in different languages.
|Title:||Feasibility Study of a Patient-driven Mobile
ICF-based Assessment Tool (mICF)
|Description:||To develop and test the user experience and feasibility of a patient-centered proof-of-concept (POC) of the mICF.|