The paradigm shift in healthcare in the last 20 years is characterized by an increase of chronic health conditions. Those usually present as a spectrum of limitations of functioning modified by the interactions between persons and environment (physical and social). The World Health Organization (WHO) provides a framework to describe and classify such variability among individuals with the International Classification of Functioning, Disability and Health (ICF).
Currently there is no user-friendly and cost efficient method in social and healthcare systems to comprehensively collect and monitor a person’s functional and contextual health-related data using ICF or any other structural framework by the patient or their caregivers. To address the needs for universal health coverage and patient-centeredness, an easy to use, mobile based version of the ICF – mobile ICanFunction app (mICF) – is proposed to facilitate patient-driven and -owned data, and interprofessional holistic care by addressing the needs of service users through shared decision-making and patient-reported outcome measures.
mICF could facilitate the dawn of a new era of universally affordable, accessible, personalized, predictive, sustainable, integrated, community-based interprofessional and transprofessional healthcare. We represent an international partnership with 284 collaborators (professionals and ePatients) from 39 countries engaged in developing the mICF – ICanFunction platform that will enable citizens to build their own functional profiles based on the taxonomy of the ICF.
It is envisaged that mICF will:
ensure accurate, efficient and standardized capture of functional status and contextual information, thereby facilitate the systemic understanding of health by service users and frontline service providers,
convey information securely between different service settings, improving effective communication between service providers and/or users,
facilitate shared decision-making for intervention (including prevention and prediction) by making person-driven and patient-owned data readily available and by defining meaningful goals and outcomes, facilitate administration and reporting through the aggregation of data, and
minimize the need for repeat data collection. In 2015 we received funding for a first prototype of our application through the Finnish Social Insurance Institution. By demonstration and live discussion with ePatients we hope to engage partners and sponsors worldwide to join our efforts to provide personalized healthcare based on function increasing social participation.
Everyone is invited to the international field testing of the ICF e-learning Tool.
The aim of this field testing is to gather information from potential users around the world about the tool’s usability and user-friendliness. This information will help us to optimize the tool according to the needs of (future) users. You can access the ICF e-learning Tool using the following link: https://icf-elearning.com/. After completing the ICF e-learning Tool, please provide feedback using the evaluation form provided.
Please feel free to share the attached document attached document containing details and the link to the field testing homepage.
20 mICF partners will meet at Stellenbosch University, South Africa, from 25-27 June 2017 to plan the next phase of the mICF project! We wish all the delegates safe travels and very fruitful deliberations!
Finland developed a first prototype of the ICanFunction mHealth Solution (mICF) to enable disabled people to self-report their life situation by using lay language based on ICF and Patient Reported Outcome Measures (PROMs).
The prototype is a combination of a mobile user interface and a content metadatabase. The user interface was designed in iterative service design workshops together with end-users. The user interface displays terminology from a Term editor metadatabase (FunctionMapper) that organises both lay language ICF-based questions or phrases and answering options and Patient Reported Outcome Measures (PROMs). The prototype is based on open source code and available for further development through EUPL 1.0 license.
Out first test results showed that this proof-of-concept was a success as the test user liked the idea behind the prototype. It enabled structured, individual self-documentation of functioning for a diverse cohort. Users will benefit from the App if their data are taken into consideration in service planning and monitoring. Adult, young and child users experienced the App as easy to use. They wanted it to be connected to electronic health and social service systems and to be easily available.
After the prototype launch several Finnish stakeholders have expressed their need and interest for the mICF as part of their current service development projects. These stakeholders include several ongoing top-priority governmental projects that develop:
National Institute for Health and Welfare invited them to a collaborative workshop Tuesday 20th June. The workshop brought various stakeholders together and discussed common needs and aims, timelines and available resources for mICF content and interface development and use in service planning and monitoring. All participants expressed deep interest to collaborative mICF content and interface development. A goal was set: all these Finnish stakeholders go back home and discuss within their decision boards their decisions of roles, tasks and resources for the collaborative development plan that THL puts together. Next meeting was set 4th September.
Some of the members of the International ICanFunction (mICF) Partnership were able to meet at the Annual Meeting of the World Health Organization Family of International Classifications (WHO-FIC) in Tokyo, Japan from 8th – 14th of October 2016.
The event was also an opportunity to showcase the recent developmental steps for our mHealth solution, connecting with other international members at this important WHO meeting. See presentation here.
On the picture from left to right: Haejung Lee (South Korea), Matilde Leonardi (Italy), Olaf Kraus de Camargo (Canada), Trish Saleeby (USA), Joanne Valerius (USA), Liane Simon (Germany) and Michaela Coenen (Germany). Haejung and Matilde were also elected as new chairs for the Functioning and Disability Reference Group (FDRG), Olaf accepted the role for the secretariat of FDRG.
MedicineX is the most discussed health care conference in the world. In 5 conferences over 20 million people were reached! We were extremely pleased to be accepted at Stanford MedicineX 2016 as this is a conference that aligns perfectly with our philosophy – We put the person into personalized medicine.
Olaf with Lieutenant Colonel Downing Lu, MD, Chief Quality Officer for the National Capital Region and LaVerne Council, Assistant Secretary for Information and Technology and CIO for the Office of Information and Technology within the U.S. Department of Veterans Affairs
“MedicineX has changed how health care providers and patients engage with and learn from one another by amplifying the patient voice in academic medicine. Including the patient voice has moved providers beyond knowing how to treat a disease to learning what it is like to live with a disease.”
That is exactly what we want to achieve by facilitating the use of the ICF by patients and caregivers: Allow them to share how they experience health, what are their limitations and goals for treatment.
Olaf with Kristin Voorhees, Director of Healthcare Initiatives at BeyondCeliac, Dr. Dan Leffler, MD at Beth Israel Deaconess Hospital and Navita Dyal, Master Student of Engineering at McMaster University
“Patients have their voice added to the conversation, but true engagement will require meaningful participation from everyone. Diverse expertise and experiences in a health care team where power is shared in an environment of trust and respect leads to more creative and innovative solutions to health care problems.”
Attending the conference also provided opportunities to connect with likeminded developers, patients and healthcare providers, learn from their projects and explore possibilities for collaboration.
A video of the talk will soon be live on the Stanford MedicineX website.
In August 2016 a small working group of the mICF partnership submitted a grant application to the U.S. based federal agency, National Institutes of Health entitled “ICanFunction mHealth Solution (mICF): Improving mental health of vulnerable youth in South Africa by mapping narratives of context and functioning to ICF.”
If successfully funded, a mental health mICF prototype will be developed and pilot-tested that captures user-driven information to improve the understanding of one’s mental health and well-being. The mobile application would be useful to both consumer users and health/social welfare professionals.
A prototype of a patient-driven ICF-based assessment tool is being developed for persons with severe disabilities so that they can self-report their life situation.
A Finnish team is developing the first mICF proof of concept in their “Feasibility Study of a Patient-driven Mobile ICF-based ICanFunction Assessment Tool (mICF)”.This one-year project (2016-2017) aims to design and develop a first prototype (POC, Proof of Concept) of the mICF for person-centered assessment of functioning based on ICF.
After a successful pitch of mICF in the Dutch Hackethon, a team worked out a mock up to build an interface for mICF. The team used the case of Tineke, a patient suffering from spinal cord disease, having a dream: travelling to Rome. But when she wanted advice on how she could travel to Rome without any medical dangers, the healthcare professional simply pointed out that her medical issues would prevent her from doing so. While healthcare professionals deal with patients and their health problems, patients view themselves as people with goals, needs, wishes and dreams. During a consult these views are not always aligned. Hence, opportunities to increase a patient’s quality of life might be missed.